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Sunday, August 27, 2006

I was not strong

A few weeks ago while we were in Borders books two adolescent boys took note of Sam as David pushed him past in his wheelchair. Sam had his head hanging sideways and was vocalizing loudly, so it was hard not to take notice of him. But after David and Sam passed the boys began laughing and one said to the other, "He's retarded." Now I don't usually take issue with the word retarded itself, but when it is said in a mocking tone by two twits who don't know the first thing about Sam then I take issue.

"Excuse me boys but you really should be careful with your words. When you use a word like retarded you can really hurt somebody's feelings. And that little boy you called retarded... that little boy is my son."

Red faced the boy apologized and I caught up with David and my sweet, yet kooky, Sam. That day I was strong.

Yesterday we went to a museum in L.A. where there was going to be an outdoor concert for kids. We thought we'd take in some of the exhibits before the concert began, but Sam had other plans. He had woken up at 4am and was very tired which made him very vocal. He also stubbornly refused to keep his head up in his wheelchair opting to view the world sideways instead. Rather than subject the other museum visitors to his yelling, I sat outside with Sam while David viewed some nature photography he was interested in. It was a busy day at the museum and people were pouring in and out of the exhibit hall we sat outside of. And lots of people took notice of Sam. Yelling, mouth hanging open, head hanging to the side he was quite a sight. And lots of people stared. After a few minutes of this I grew uncomfortable. Usually I easily shrug off others' ignorance when it comes to Sam. But yesterday it stung. I was not feeling strong enough to deal with rude people. And I cried. I just wanted to go home. Yesterday I was not strong.

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