Born again disabled

Recently a very wise friend and I were discussing Christianity and its views on particular life matters. I mentioned how I really had a hard time with some of the perspectives on disability that come from my Christian friends. I've been told by many of these well-meaning individuals that Sam is here for a reason and that by allowing Sam's disability God has meant for me to learn a valuable lesson. I'm not sure if each individual has their own tailor made lesson to learn but there appears to be a broader goal of learning to trust in God's glory. From my own limited reading on the matter it would seem that disability exists because a long, long time ago in a lush garden two foliage clad humans got hungry and ate something they weren't supposed to and now we all must endure suffering for their sin. So now we've got pain, hunger, etc. And we've got these people with disabilities. But basically it's all okay because we've also got this dude, God, who can make it all better. Now he may choose to make it better by healing the individual with the disability or he may not. The suffering may just have to be endured until death. But it's still okay because there remains a chance for salvation after death. You just have to trust this unseen entity or have.... what's that word.... faith. Let me break it down as I see it: two people I've never met fucked up, wreaking havoc for our world, causing God to "allow" my child to be born disabled so that I, and anyone else who cares to benefit from my child's suffering, may learn how to kiss God's ass while waiting for a miracle cure or maybe just die first. And you wonder why I'm not a Christian.

So this wise friend says to me, "Has anyone ever proposed to you the idea that maybe Sam, himself, chose this path for his life's experience?" Well, no. This seems to presuppose the idea that Sam was sentient prior to conception. And it suggests that Sam is not here merely for my own selfish gain or to stroke the ego of some supreme being. This hints of Eastern religion. And I like it. "So this resonates with you?" my friend asked. I guess if I couldn't just accept Mindy and David's philosophy appropriately called "Shit Happens" and I needed a reason to explain Sam's disability then, yes; the idea that maybe there was something Sam needed to get out of this earthly experience and chose his disabled body accordingly, resonates with me. How can it not when Sam fought so hard in his first year of life just to be here? It is not by the glory of God that he is still with us despite his challenges. Give the kid some credit. Sam is here because he's fought hard for this life. And is there a lesson in this? Maybe. While Sam is here pursuing his own experience we may be able to open ourselves up enough to glean something of our own from knowing Sam. Maybe this child, with his spirit unfettered by the ego defenses most of us carry around, allows us much closer contact with the essence of who he is and a clearer reflection of who we are. Maybe it's in this way that Sam truly is a blessing. This comes not from what he has brought to teach us, but rather from how we may choose to enhance our own experience with lessons learned from such an open soul.