A little over 3 years ago David and I were thrust into a world we could have never imagined.
The day Sam was born was the beginning of a new life for our family. We were bombarded with advice from well meaning friends and acquaintances; some of these people had experience with this new world, but most did not. The support of these people was amazing, invaluable and something for which I am eternally grateful; but their advice always missed the mark. We also were visited by "professionals" who came bearing books and essays to help us understand and cope with our new life. One of the supposedly helpful materials given to us was a little essay called
Welcome to Holland. Now I don't know what disability the child of the author had but I have to believe that it must be something mild if she chose Holland to use as her metaphor. If I were to write a similar piece I would probably title it
Welcome to the Ghetto. You boarded that plane expecting to arrive in beautiful Italy only to find yourself exiting a urine soaked cab as some transient holds a gun to your head. Realizing your roundtrip ticket was mistakenly issued as one-way, you don't shrug your shoulders and learn to love your new home; instead you vow to fire your travel agent and find a way to Italy. Unfortunately the transient made off with your cell phone and all you credit cards. While I'd love to be in Italy or, hell even Holland, I have learned to love my ghetto life. But David and I have still had to find our own way of surviving in the hostile new place we found ourselves and no fluffy book on special needs children or clever essay on accepting our new life helped. Actually, I believe most of this well meaning material and advice only fueled the fire for our favorite coping mechanism: black humor. Some of the stuff that came out of our mouths shocked even us which made it that much funnier. Unfortunately, there are quite a few people who would love to see us tarred and feathered for some of the comments we've made. One mom on the Joubert Syndrome list I belong to wrote that there should be a special place in hell for anyone who uses the word "retard." Which I just think is... well, retarded. And I maintain my right to use that word when it makes an almost unbearable situation just a bit humorous for David and me, or if the word conjures up the appropriate image with all the social stigma attached
to drive home a point.
And all this was leading up to explaining the real meaning behind the "2.7 kids" in the blurb beneath my blog title and its reference to Sam's
incomplete brain. Even though it was damn funny to me and David at one point it still seems a bit callous when written here. Now I shall take my children, properly assembled and not, and go into hiding for awhile.